What is the survey about?

This survey is about the care that you and your child have received for your child's allergy and symptoms, including asthma / rhinitis, hayfever, eczema, food allergy and anaphylaxis.

Who is the questionnaire for?

The questions have been designed to be answered by the parent/carer of the child with the allergy and symptoms.

Firstly, can you tell us are you completing this questionnaire following a consultation at your GP practice or at hospital?

Following a consultation at my GP practice
Hospital

ABOUT YOUR CHILD'S ALLERGY

1. What condition does your child have have? (Tick more than one if you need to):

Asthma (wheezing, chest coughs)
Hayfever or Rhinitis (itchy runny nose or eyes, sneezing)
Eczema (itchy / red skin)
Food Allergy (vomiting, tummy ache)
Don't know / Can't remember
Other:


2. How long has your child had any allergic symptoms?

For less than one year
For over one year
Since I was a small baby
Don't know / Can't remember

INITIAL RECOGNITION

3. How many times did you see a health professional about your child's first allergy symptoms before they were given a firm diagnosis?

My child has not yet received a firm diagnosis
Between 2 and 3 times
Between 4 and 6 times
7 times or more
Don't know / Can't remember

Still thinking about this most recent healthcare professional your child saw for their allergy...

7. Were you given a chance to discuss your child's treatment (including medication options and avoidance advice)?

Yes, definitely
Yes, to some extent
No
It was not necessary

8. Did you feel that this healthcare professional knew enough about your child's allergic condition?

Yes, definitely
Yes, to some extent
No
They did not know what the allergy was

9. Did this person answer your questions in a way you could understand?

I did not have any questions
I did not have a chance to ask
Yes, definitely
Yes, sort of
No

10. Did you have confidence and trust in this member of staff?

Yes, definitely
Yes, to some extent
No

11. Overall, how well do you think your child was looked after by this person?

Very well
Quite well
Not very well
Not at all well

16. Do you have enough information about when you should use their medicines?

Yes, definitely
Yes, sort of
No

17. Do you know how to use the medication(s)?

Yes, definitely
Yes, sort of
No

18. Have health professionals told you about the side effects (including complications of long-term use to watch):

Yes, definitely
Yes, sort of
No
This is not needed

19. Has your child ever been given any emergency treatment (such as an injection, oxygen or medicine) by healthcare staff?

Yes No Don't know/cant remember

20. Did staff give you enough information about this emergency treatment?

Yes
No, but I would have liked this
No, but I did not need this
Can't remember

21. Does your child carry an injector for your condition (e.g. EpiPen / Anapen / Jext)?

Yes
No
Don't know/cant remember

26. Are you involved in decisions about your child's allergy care and treatment?

I do not want or need to
Yes, definitely
Yes, to some extent
No, but I would like to

27. Do you have the phone number of a doctor or nurse who you can contact about your child's condition?

Yes, during working hours only
Yes, out of hours only
Yes, at any time
No, I do not have a phone number

28. Do you have information about support groups for your child's condition (such as Allergy UK, Asthma UK; Anaphylaxis Campaign; National Eczema Society)?

Yes, enough information
Some but not enough information
None, but I would like this
I do not want or need this

29. Overall, do you have enough information about your child's allergic condition(s)?

Yes, definitely
Yes, sort of
No

30. Overall, how well do you think your child's condition is looked after by healthcare staff (doctors and nurses)? Please tick ONE only based on your overall allergy care:

Very well
Quite well
Not very well
Not at all well

4. From when you first saw a health professional about your child's condition, how long did you wait for tests to be carried out (to confirm what causes their condition or makes it worse)?

They were done straight away
Less than 1 month
Between 1 month and 3 months
Between 3 months and 6 months
More than 6 months
They are still waiting to have tests
Don't know / Can't remember

RECENT ALLERGY CARE

Thinking about your child's most recent healthcare for their allergy (e.g. GP visit / hospital care / ambulance)...

5. Who was the most recent person your child saw about their allergy? (Tick ONE only). If they saw more than one person, please select the MAIN person that they saw:

Specialist allergy staff (e.g. clinic staff/ specialist hospital doctor)
GP / family doctor / practice nurse
Emergency hospital staff (ambulance staff/ paramedics; A&E staff)
Urgent care centre staff (e.g. doctor, nurse)
General paediatrician (not an allergy specialist)
Dietitian
Other

6. Did this health care professional talk to you in a way that you could understand?

Yes, definitely
Yes, sort of
No

MANAGING YOUR CHILD'SCONDITION

Personal Management Plans

12. Do you and your child have a personal management plan for their condition? Please read the description in the box above if you are not sure what this is:

Yes No Don't know

13. Does your child's school or nursery know about their personal management plan?

Yes
No
Don't know
This is not necessary / my child does not go to school or nursery

14. Do you and your child follow their personal management plan?

Yes, definitely
Yes, to some extent
No

Treatment & Medication

15. Does your child use any prescribed medication for their condition (such as medicines, tablets, creams, inhalers and/or injectors)?

Yes No

Ongoing care

22. How do you feel about how often your child has an allergy review or check-up (for example an appointment with your GP or at an allergy clinic)?

I would like more check-ups
It is about right
I would like fewer check-ups
I have only been seen once
Not sure

23. Do you know enough about what allergens and triggers your child should avoid (such as food, dust, pets)?

I know enough
I know some but not enough
I do not know enough

24. Do health professionals (e.g. doctors and nurses) communicate with your child's school or nursery about their condition?

Yes, definitely
Yes, to some extent
No
Don't know
This is not necessary / they do not go to school or nursery

25. Do health professionals communicate with each other about your child's condition?

Yes, all or most of them do
Some of them do
No, very few or none of them do
We only see one health professional
Don�t know

AND FINALLY . . .

31. Who was the main person who answered the questions in this section of the questionnaire?

The young person who has the allergy
The parent or carer of the child
Both parent and child together

32. Is your child a boy or a girl?

Boy
Girl

33. How old is your child?

years old

34. To which of these ethnic groups would you say your child belongs? (Tick ONE only):

White (e.g. British, Irish, European)
Mixed (e.g. White and Asian)
Asian / Asian British (e.g. Indian)
Black / Black British
Chinese
Any Other Ethnic Group

ANY OTHER COMMENTS?

If there is anything else you would like to say (particularly good) about your child's allergy care, please do so here.


Is there anything about your child's allergy care that could be improved, or anything else that you need?

Thanks very much for your help!